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| Books and Poems
We are happy to share with you some of the wonderful stories and poems we have received from children and adults with A-T, their parents, siblings, teachers and friends.
Additions: If you would like to submit a story, essay or poem by or about an A-T patient, please provide the author's name, age, city and state and relationship to the A-T patient if the author is not an A-T patient.
Email the piece to info, or mail it to:
A-T Children's Project/Books and Poems
5300 W. Hillsboro Blvd. #105
Coconut Creek, FL 33073
Books
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Lincoln Center Collection of Speeches
Renate Klein
Speeches written and presented by Renate Klein at the annual “A Very Special Evening Benefit,” an intimate theater evening
2007: My Thoughts on Living with A-T
2008: The Meaning of Fundraising for Me
2009: Introducing Me
2010: The Emotional Roller Coaster That is A-T |
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All About Me
Alana & Teri Little
"My name is Alana Ashley Little, but everybody calls me Lana. (Lots of people can’t figure out how to pronounce my name, so they call me Alaina, which drives me nuts. It is actually pronounced A-Lawn-A.) I was born in Gretna, Louisiana on October 10, 2003, so that makes me a Cajun kid..."
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Our Friend Michele
Adrianna, Dan, Katelyn, Kathy, Stephanie, and Steven.
Edited by Tim Poynton
"Hi - We are Michele's friends! We are currently in the sixth grade at Rensselaer Middle School..."
A book by her friends to help people understand how ataxia-telangiectasia affects them, and the people around them. |
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My Story
Keaton Sakowich
"My name is Keaton. I am enjoying the second grade with Ms. Saylor and Ms. Cusick. I have a lot of nice friends to play with at recess. I keep up with them very well even though I am a bit wobbly. I am wobbly because I have something called A-T..."
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Timmy's Gang
Katharine A. Dresel
"Timmy woke on Sunday morning to the sound of his alarm clock. He reached over to turn it off but just then, his litter sister Alex came bursting in. The sound of the door opening startled Timmy and he lost his balance and fell off the bed and hit his head on the way down..." |
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Poems
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What's a Drop of Dew to Do?
Scott Butler
Reflections of an
adolescent's birthday |
"This birthday brings feelings
Familiar, yet new.
Tis' like the dawn of day
And the early morning dew." ...continue |
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| Borders separate our countries, but A-T ignores boundaries and changes people's lives throughout the world. A young man and two young women from two different countries share with us their own reality of living with A-T... |
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Who I am
Thomas Roberts-Wierzbowski |
"My wish to walk is just out of reach
Like an apple too high on an apple tree.
My wish to run
Is a fire burning in my heart." ...continue |
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About Me
Sara Drohan |
"I have very strong feelings
and a very good imagination.
When I watch movies
I feel like I'm in them." ...continue |
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Who am I???
Renate Klein |
"I am a pastor's kid
I am a daughter
And a sister
I am a cat owner" ...continue |
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The A-T Children's Project is a non-profit organization that raises funds to support and coordinate first-rate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure or life-improving therapies for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a strikingly high rate of cancer, especially leukemia and lymphoma.
The A-T Children's Project is a registered charity in both the United States and Canada. |
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