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A-T Children's Project conducted a survey of A-T families in 2005-2006 to identify facets of A-T that physicians examining patients with the disease might never detect during an office visit, but that are in fact a definite characteristic of the disease. Results of the survey will help A-T families by providing information about the experiences of other families. The data reported represents 114 responses to the 240 surveys that were sent between October 2005 and March 2006... more

 

   Fact Sheets About 
   Ataxia-telangiectasia

  

   - Cancer Risk 

   - Estrogen Replacement

   - Immune Function

   - Swallowing Problems

   - X-Rays

Handbook for Families and Caregivers

 

Table of Contents

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Chapter 1          Overview 
Chapter 2          The Gene (A-T) and its Gene Product (ATM)    
Chapter 3          Inheritance    

Chapter 4          Neurology Problems    
Chapter 5          Immunodeficiency    
Chapter 6          General Care during Infections    
Chapter 7          Feeding and Swallowing 
Chapter 8          Cancer and Risk of X-ray Exposure 
Chapter 9          The Eye and Vision 
Chapter 10        General Principles of Rehabilitation 
Chapter 11        Mobility and Gross Motor Abilities: The Role of Physical Therapy    
Chapter 12        Activities of Daily Living and Fine Motor Abilities 
Chapter 13        School Learning and Social/Emotional Adjustment 
Chapter 14        Speech and Language 
Chapter 15        Assistive Technology for Written Communication 
Chapter 16        Glossary


 

A-T Children's Project, 5300 W. Hillsboro Blvd. #105, Coconut Creek, FL 33073   800.5.HELP.A-T  954.481.6611