Resources for Families

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   Fact Sheets About 
   Ataxia-telangiectasia

   - Cancer Risk 

   - Estrogen Replacement

   - Immune Function

   - Swallowing Problems

   - X-Rays

 A-T Information from the Handbook for Families and Caregivers

• Overview 

   

• The Gene (A-T) and its Gene Product (ATM) (Rev. 2008)

   

• Inheritance (2000)

   

• Neurology Problems (2000)

   

• Immunodeficiency (2000)
  Immune System in A-T
  Gamma Globulin 

   

• General Care During Infections (2000)
  Specific Illnesses
  Respiratory Illness
  Chest Postural Drainage
  Gastrointestinal Illness 

   

• Causes of Lung Disease and Respiratory Symptoms (2009)
  Monitoring Lung Function and Diagnostic Studies
  Treatment and Prevention of Lung Disease in A-T 

   

• Feeding and Swallowing (Rev. 2008) 
  Feeding and Swallowing Difficulties 
  Eating and Drinking  

   

• Cancer and Risk of X-ray Exposure in A-T Patients (Rev. 2008)

  Cancer and Risk of X-ray Exposure in A-T Carriers 

• The Eye and Vision (Rev. 2008) 

   

• General Principles of Rehabilitation (2000) 

   

• Mobility and Gross Motor Abilities: The Role of Physical Therapy (2000)

   

• Occupational Therapy for A-T (Rev. 2008)
  Occupational Therapy Recommendations

  Activities of Daily Living 

  Home Environment 

  Higher Level Activites of Daily Living 

• School and Learning (Rev. 2008)
  Social/Emotional Adjustment 

• Speech and Language (Rev. 2008) 

  Speech and Language Recommendations

    

• Assistive Technology General Findings (Rev. 2008)

  Keyboard Adaptations

  Mouse Control Options 
  Visual Adaptations 
  Reading and Writing 
   

• Glossary (2000)

   

• NEW! School Programming for Students with Ataxia-Telangiectasia (2008)
  Developing an Individual Education Program (IEP) (2008)